Lara is a 6-year-old girl from Braga who fights every day against a rare, serious and degenerative disease called Vanish White Matter Leukodystrophy, which currently has no cure.
The story of « Princess Lara » was presented by an ETMA employee when, at the end of 2023, under the motto « IMPROVING LIVES – TOGETHER FOR A CAUSE », the company challenged its employees to nominate organisations or social causes that they would like to see sponsored by the company in 2024.
Of the three causes selected and put to the vote, Princess Lara » was the winner. This was the result of the great commitment of the company’s employees to make this the cause to sponsor this year.
Leukodystrophy is a progressive disease that affects the motor system, as well as the nervous, respiratory, digestive, sensory, urinary and reproductive systems. So, Lara no longer walks and is wheelchair-bound.
Because of this illness, little Lara’s needs are constant and growing, resulting in high costs for treatment and medication, which average around €1,300 a month and are not reimbursed.
In the meantime, we were delighted to receive a visit from the lovely Lara, so that we could start sponsoring her.
More than ever, the expression « Unity is strength! » makes perfect sense, so ETMA is now mapping out the actions it will take throughout this year to support Princess Lara’s cause, including challenging other companies to join in developing support initiatives.
In addition to financial aid to cover the cost of therapies, medicines, supplements and orthopaedic equipment, support could also include helping to collect and transport bottle tops to raise money for a new wheelchair.
If any individual or company would like to join ETMA and support this cause, please contact us by email at marketing@etmametalparts.pt.
Let’s go TOGETHER to make a difference in the life of this little girl who is a real princess?